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Como referente de colaborador internacional de la asociación está el Consorcio Europeo de PHP
El Consorcio Europeo en PHP constituye en la actualidad el marco europeo de investigación más destacado en esta enfermedad, y en él participan, como únicas representantes españolas, el grupo coordinado por la Dra Pérez de Nanclares. Asimismo, este grupo participa también activamente en la Acción Europea BM1208 para el mayor conocimiento de las enfermedades de impronta y diseminación del mismo, tanto entre profesionales de la salud como con los propios pacientes (http://www.imprinting-disorders.eu/).
Este estrecho contacto con otros profesionales permite a las familias de la AEPHP beneficiarse de cualquier estudio clínico y/o conocimiento científico relevante para un mejor diagnóstico y seguimiento de los pacientes.
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